FSHD global research foundation

Contact

The FSHD Global Research Foundation is an Australian not-for-profit organisation dedicated to finding a treatment and cure for Facioscapulohumeral Dystrophy (FSHD).

The FSHD Global Research Foundation has funded thirteen research projects over the past three years in the USA, Netherlands, Italy, France, Belgium and Australia.

The FSHD Global Research Foundation has funding available for research directed at the twin goals of better understanding the human disease Facioscapulohumeral Dystrophy and identifying treatments.

FSHD funding comes from individuals afflicted by FSHD, their friends, supporters and corporate sponsors. We do not receive government or MDA support of any kind. If you can donate or contribute in any way please contact us and help us make up for lost time.

  • imageDiscover how you can help us through volunteering, partner programs, donating and more. Contribute
    imageEnter your teams now for the FSHD Global Golf Tournament.
    Wed 30 Nov at St Michael`s Golf Club.
    Events
    imageLearn about our current research projects around the world and how you can apply for research funding. Research
  • News and Updates
    Bill Moss releases memoirs "STILL WALKING"

    [November 2011] These memoirs are the inspirational, moving, blunt and at times very funny account of how a senior and seemingly all-powerful Macquarie banker stru...

    more >

    Inaugural Bill Moss AM Fellowship

    [September 2011] Professor John Rasko, Chairman of the FSHD Global Scientific Grants Review Committee, presented the inaugural Bill Moss AM Fellowship to ...

    more >

    Dr. Gabellini’s Research Published

    [September 2011] The results of Dr. Davide Gabellini’s work on a treatment for FSHD were released this August in an Advanced Online Publication from the...

    more >

    Evaluation of Synthetic Genes for Inhibition of Faulty Genes in FSHD

    [September 2011] FSHD is a common form of muscular dystrophy in adults, affecting about seven in 100,000 people, causing a progressive wasting of muscles ...

    more >

    view all news >