FSHD Global Research Foundation
... making up for lost time

 

The FSHD Global Research Foundation is an Australian not-for-profit organization dedicated to finding a treatment and cure for Facio-Scapulo-Humeral Dystrophy (FSHD).

FSHD is the second most common form of muscular dystrophy in adults and the third most common genetic hereditary disease seen in skeletal muscle.

There are many different types of muscular dystrophy - unfortunately, a cure for one is not a cure for all.

At any one time the FSHD Global Research Foundation is funding several research projects around the world, with a particular encouragement of Australian based FSHD research.

While FSHD is one of the most common muscular dystrophy types, research into it is a staggering 20 years behind that of the most common form. The overarching goal of the FSHD Global Research Foundation is to address this inequity and quicken the pace on finding a treatment or cure for FSHD.

Support the FSHD Global Research Foundation's quest to make up for lost time!

 

 NEWS

30 November, 2009 - Bill Moss AM delivers the Kenneth Jenkins Oration at the National Disability Services CEO Conference, Canberra.. click here to read the speech in its entirety

13 November, 2009 - The FSHD Global Research Foundation has a new Science Strategy for 2010... click here to read more

3 November, 2009 - Find out how buying chocolate can help FSHD research... click here to read more

7 August, 2009A 2008 study by Orphanet entitled ‘Prevalence of rare diseases: A bibliographic Study' lists FSHD as the most prevalent form of muscular dystrophy...click here to read more

 


 

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