The FSHD Global Research Foundation

The FSHD Global Research Foundation is an Australian not-for-profit organization dedicated to finding a treatment and cure for Facio-Scapulo-Humeral Dystrophy (FSHD). 

FSHD is one of the most common forms of muscular dystrophy and genetic hereditary diseases seen in skeletal muscle. Its prevalence varies from country to country depending on medical diagnostic competence. In 2008 a study by Orphanet entitled ‘Prevalence of rare diseases: A bibliographic Study' lists FSHD as the most prevalent form of muscular dystrophy in Europe, while in some third world countries its prevalence is not recorded at all. 

The FSHD Global Research Foundation has funded seven research projects over the past two years in the USA, Netherlands, Italy, France and Australia.

The FSHD Global Research Foundation has funding available for research directed at the twin goals of better understanding the human disease Facio-Scapulo-Humeral Dystrophy and identifying treatments.  Although all applications are considered on their merits, the below information provides some guidance as to areas the Foundation currently considers of special importance.  These priority areas of interest are reviewed and updated periodically. 

Please click here to view the Foundation's priority areas of interest.

FSHD funding comes from individuals afflicted by FSHD, their friends, supporters and corporate sponsors. We do not receive government or MDA support of any kind.  If you can donate or contribute in any way please contact us and help us make up for lost time.

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