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Future Events
If you would like to organise and host an awareness or fundraising event for FSHD Global please read the Fundraising Terms and Conditions and click the Registration form and complete and mail/fax/email it to:
- Post: PO Box A296 Sydney South, NSW 1235, Australia
- Fax: +61 2 8007 7038
- Email:events@fshdglobal.org
25 January 2011
Bill Moss AM, Chairman of the FSHD Global Research Foundation, recently appeared in an article in the Australian Financial Review, entitled ‘A rallying call from the heart’ in which he condemns the lack of employment of people with disabilities at all levels (but especially board and executive levels) in Australia’s corporate sector.
The article talks about the rising public spending that relates to disabilities and sickness (which currently makes up 15 per cent of Australia’s total public spend), with an increased number of disabled people claiming benefits, and total support payments for the next four years recently revised upwards by $900 million.
As the Government awaits the findings of a Productivity Commission report which will look at the benefits of replacing the current system of disability services with a new national scheme, Bill argues that in order to make a difference in the lives of the disabled, they need to be employed.
Bill proposes that the Government consider imposing a target on the top 500 ASX companies that people with a disability comprise three to five per cent of their workforce, with taxes to be used as a penalty or reward for failing to reach or exceeding the quota.
28 February 2011
FSHD Global Research Foundation is approaching 2011 with a fresh outlook. A number of exciting research breakthroughs marked 2010, including the rising prominence of Dux4 in FSHD. We remain committed to supporting the efforts to find a treatment for Facioscapulohumeral Dystrophy and through this deliver on our promise to the Foundation’s supporters, many of whom are long-term FSHD sufferers.
This year we are calling for applications for research projects globally as well as in Australia. Please read more [link to Call for Applications] about how to submit a research proposal.
[May 2011]The 2010 FSHD Global Golf Tournament, The 2nd Annual FSHD Global Golf Tournament was a grand success. Raising over $111,000.00 for medical research into Facioscapulohumeral dystrophy this two day Tournament managed to excite even the most amateur golfers in the group. [read more]
[May 2011]FSHD Chateau d’Yquem Luncheon, On February 21, the FSHD Foundation held an exclusive Chateau d’Yquem luncheon at glass brasserie. Hosted by Greg Williams from Moet & Hennessey this private lunch successfully tantalised attendee’s pallets by drinking several vintages of Chateau d’Yquem…[read more]
18 July, 2007
“The FSHD Global Research Foundation has donated over $400,000 to Sydney IVF Limited. In a world first Sydney IVF will derive stem cell lines that will allow for research and drug development into Facioscapulohumeral Dystrophy. ” More
15 August, 2008
“On Sunday August 10th 2008, 169 runners from Macquarie Bank took to the streets as part of the 2008 Sydney City to Surf to raise much needed funds and awareness for FSHD. The runners filled all categories from elite to back of the pack. After the event the runners met at the BB’s in Bondi to relax and enjoy a massage and refreshments…” More
25 September, 2008
“A generous gift from a leading business figure will help scientists to investigate the third-most common form of muscular dystrophy. ” More
30 October, 2008
“During his final months as a senior executive at Macquarie Bank, Bill Moss would get home some nights and be unable to take off his shoes. Nor would he be able to walk up stairs, or even pick up a pen.” More