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Bill Moss AM, Chairman of the FSHD Global Research Foundation, recently appeared in an article in the Australian Financial Review, entitled ‘A rallying call from the heart’ in which he condemns the lack of employment of people with disabilities at all levels (but especially board and executive levels) in Australia’s corporate sector.

The article talks about the rising public spending that relates to disabilities and sickness (which currently makes up 15 per cent of Australia’s total public spend), with an increased number of disabled people claiming benefits, and total support payments for the next four years recently revised upwards by $900 million.

As the Government awaits the findings of a Productivity Commission report which will look at the benefits of replacing the current system of disability services with a new national scheme, Bill argues that in order to make a difference in the lives of the disabled, they need to be employed.

Bill proposes that the Government consider imposing a target on the top 500 ASX companies that people with a disability comprise three to five per cent of their workforce, with taxes to be used as a penalty or reward for failing to reach or exceeding the quota.

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FSHD Global Research Foundation is approaching 2011 with a fresh outlook. A number of exciting research breakthroughs marked 2010, including the rising prominence of Dux4 in FSHD. We remain committed to supporting the efforts to find a treatment for Facioscapulohumeral Dystrophy and through this deliver on our promise to the Foundation’s supporters, many of whom are long-term FSHD sufferers.

This year we are calling for applications for research projects globally as well as in Australia. Please read more [link to Call for Applications] about how to submit a research proposal.

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“The FSHD Global Research Foundation has donated over $400,000 to Sydney IVF Limited. In a world first Sydney IVF will derive stem cell lines that will allow for research and drug development into Facioscapulohumeral Dystrophy. ” More

“On Sunday August 10th 2008, 169 runners from Macquarie Bank took to the streets as part of the 2008 Sydney City to Surf to raise much needed funds and awareness for FSHD. The runners filled all categories from elite to back of the pack. After the event the runners met at the BB’s in Bondi to relax and enjoy a massage and refreshments…” More

“A generous gift from a leading business figure will help scientists to investigate the third-most common form of muscular dystrophy. ” More

“During his final months as a senior executive at Macquarie Bank, Bill Moss would get home some nights and be unable to take off his shoes. Nor would he be able to walk up stairs, or even pick up a pen.” More