If you would like to receive the FSHD Global Newsletter, please click here and request Newsletter. We will be happy to send you a copy.
Please contact FSHD Global if you have an FSHD story you would like to share or any stories/topics you would like to see within the FSHD Global Newsletter. The Foundation would love to hear from FSHD patients, friends, family, Dr, researchers or anyone interested in contributing to the Newsletter.