1. There is no treatment or cure
for FSHD.
2. FSHD is 2nd most common
form of MD seen in Adults.
3. FSHD affects both males and
females of all races and age
groups.
4. The cause of FSHD is unknown.
5. There are over 30 different
types of MDs and they are all
genetically different - a cure for one is not a cure for all
6. To date, medications used for
other MDs have had no benefits
for FSHD patients.
7. There has been no direct
Australian funding for FSHD
research prior to FSHD Global
establishment.
8. New estimates