One of FSHD Global's aims is to promote awareness of FSHD in Australia and around the world. Here are a few media mentions where this has occurred.
Bill Moss releases memoirs "STILL WALKING"
[November 2011] These memoirs are the inspirational, moving, blunt and at times very funny account of how a senior and seemingly all-powerful Macquarie banker struggled for years through physical discomfort, pain and the many barriers thrown in the path of people with physical disabilities, not just to rise to the international heights of a notoriously difficult profession but also gradually to face and come courageously to terms with his disability.
All profits from book sales to be donated to FSHD Global Research Foundation and Fighting Chance Australia.
To purchase your copy of the book please go to www.stillwalking.com.au or email admin@fshdglobal.org.
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Inaugural Bill Moss AM Fellowship
[September 2011] Professor John Rasko, Chairman of the FSHD Global Scientific Grants Review Committee, presented the inaugural Bill Moss AM Fellowship to Dr. Leslie Caron at the FSHD Lindt Chocolate Ball held recently at the Four Seasons Hotel. [read more]
Dr. Gabellini’s Research Published
[September 2011] The results of Dr. Davide Gabellini’s work on a treatment for FSHD were released this August in an Advanced Online Publication from the highly regarded scientific journal Molecular Therapy. His results are extremely important for several reasons. [read more]
Evaluation of Synthetic Genes for Inhibition of Faulty Genes in FSHD
[September 2011] FSHD is a common form of muscular dystrophy in adults, affecting about seven in 100,000 people, causing a progressive wasting of muscles in the upper body. The cause is thought to be the activation of a normally ‘silent gene’, called DUX4. [read more]