FSHD global research foundation

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Latest News: One of FSHD Global's aims is to promote awareness of FSHD in Australia and around the world. Here are a few media mentions where this has occurred.
Where there's a will: businessman helps breakthrough on muscle-wasting disease

[May 2012] ''YOU'VE got to have a go'' if you want to make a difference, is businessman Bill Moss's motto, and it has paid off.
Medical research that he helped fund into an untreatable muscle-wasting disease from which he and many others suffer has come up trumps. [read more]

We are again running our AFL Footy Tipping Competition this year, with sensational prizes on offer

[March 2012] We are again running our AFL Footy Tipping Competition this year, with sensational prizes on offer. First Prize: 5 nights accommodation at "Kabuki by the Sea'' in Swansea (Tasmania). Second Prize: $200 dinner voucher in the CBD or town near you. [read more]

FSHD Save Our Smile (SOS) Christmas appeal raises $100,000

[March 2012] Thank you to all the team members of Team FSHD Global for a great effort in raising funds from your networks. James Harvey - Graydon Hanly - Bruce O’Brien – Alan Stirling - Susan Melville - Monica Ellis - David Bradley - Justin Reid - Caroline Coghlan [read more]

Presentation to NSW FSHD Branch Members

[February 2012]Members of the NSW FSHD State Branch met at the Kirribilli Club to hear an update on funded research. Thank you to Dr Alan Watts for providing an overview of the research and also to Dr Leslie Caron from Genea (formerly Sydney IVF)...[read more]

FSHD Chocolate Ball 2012

[March 2012] After the resounding success of the Sydney FSHD Lindt Chocolate Ball last year, we are proud to announce that the Gala Ball will again be held in Sydney on Saturday, 14 July 2012 at Hilton Sydney, 488 George Street, Sydney, NSW 2000.[read more]

Watch Bill Moss AM interviewed by Peter Switzer about his book Still Walking.

[February 2012] Former Macquarie banker and philanthropist Bill Moss's memoirs are the inspirational account of how a senior and seemingly all powerful banker struggled for years through pain and the many barriers thrown in the path of people with physical disabilities...[read more]

Dr Leslie Caron wins International IN Cell Image Competition

[February 2012] Dr Leslie Caron, FSHD funded researcher is the First Australian to win the International IN Cell Image Competition and her photograph will be showcased at Times Square, New York.[read more]

One-off donations

[September 2011] One-off donations. There are three easy ways to donate to FSHD Global using a credit card, direct debit or cheque.[read more]

Find out about the many ways you can contribute.

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Find out about the many ways you can contribute.

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