Bill Moss AM deliver 30 November, 2009 It's Time for a Fair Go click here to read the speech in its entirety FSHD: The most prevalent form of muscular dystrophy 7 August, 2009 "A 2008 study by Orphanet entitled ‘Prevalen Entertainment Books to raise money for FSHD! 29 May, 2009 "Entertainment Books are a great way to save money while enjoying a night out or a day with the family. Each book is full of hundreds of 25-50% and two-for-one offers from popular restaurants, cinemas, hotels, arts and sporting venues. You will receive over $15,000 in valuable offers, valid through to 1 June each year..." click here to read more Groundbreaking Online FSHD Survey 6 May, 2009 "The FSHD Global Research Foundation is teaming up with Melbourne based researcher, Dr Triecia Gibney, to develop a study which will explore the quality of life of people with FSHD. There have been few attempts to quantify how factors such as symptom onset, age at diagnosis, symptom severity and the uncertainty associated with disease progression impact on the quality of life of people affected by FSHD. The research will attempt to address this gap with an online survey giving a voice to people who are living with FSHD all around the world..." click here to read more New partnership with Australia's Biggest Book Group 31 March, 2009 In an exciting development, The FSHD Global Research Foundation will partner with Australia's Biggest Book Group to raise money to find a treatment or cure for FSHD.
With Australia's Biggest Book Group dona
100,000 participants would raise $1 million for muscular dystrophy care and research.
Sydney IVF Stem Cell Breakthrough Gives New Hope To FSHD Cure
19 March, 2009
"Researchers at Sydney IVF and the Australian-base
Jamie Durie and Monica Ellis announced as FSHD Ambassadors
25 Febuary, 2009
"Jamie Durie is an international television identity and highly acclaimed horticulturalis
FSHD Global Opens New Sydney Office
30 January, 2009
"The FSHD Global Research Foundation can now be reached on
Macquarie Bank running for a Cure: $29,000 raised for FSHD research
15 August, 2008
"On Sunday August 10th 2008, 169 runners from Macquarie Bank took to the streets as part of the 2008 Sydney City to Surf to raise much needed funds and awareness for FSHD. The runners filled all categories from elite to back of the pack. After the event the runners met at the BB's in Bondi to relax and enjoy a massage and refreshments...