Principles
The rights to privacy of people having dealings with FSHD Global Research Foundation Limited - members, donors, people who receive a service from FSHD, volunteers, employees, prospective employees etc - shall be ensured.
Personal data in any form will be managed with diligence.
FSHD will be open and accountable about how personal information is handled.
What Information is Collected and How
The type of information collected and retained by FSHD includes personal information about:
Do We Use Cookies?
Yes - cookies are pieces of information that will be sent by FSHD when you log onto our web site. These will be stored on your computer's hard drive, to allow us to recognise you as a user when you next visit.
Personal Information Personally Provided
FSHD collects personal information held about an individual by way of forms filled out, face to face meetings and interviews, telephone calls, facsimiles, email and sometimes through use of consultants.
When collecting information:
Personal Information Provided By Other People
In some circumstances FSHD may receive personal information about an individual from a third party - re example, references or referrals.
FSHD's Use of Personal Information Personally Provided
In general, FSHD will use or disclose information only for the primary purpose for which the information was collected. When information is to be used or disclosed for other than the primary purpose for which it was collected, consent will be obtained wherever practicable.
Secondary use of disclosure will occur only if the individual agrees, or law allows the use or disclosure of information.
FSHD will not send personal information about an individual outside Australia without obtaining the individual's consent or complying with National Privacy Policies.
Management and Security of Personal Information
As a condition of employment, FSHD's staff is expected to respect the confidentiality of information and the privacy of individuals.
FSHD will take reasonable steps to ensure that the information it collects, uses, retains or discloses is accurate, complete, and up to date. However, the accuracy of that information depends to a large extent on the information individuals provide.
It is recommended that people dealing with FSHD:
To update personal information, please contact FSHD Global Research Foundation Limited on:
Or
Or
An individual has the right to obtain access to any personal information FSHD retains and to advise of any perceived inaccuracy.
Please contact the Administration Officer at the above contact details, in writing, if you wish to obtain access.