Real Stories
We are a family dealing with FSH Muscular Dystrophy. Our journey with FSH MD began with the birth of our eldest daughter, Sophie. Sophie was born prematurely at 32 weeks and had breathing problems requiring a lengthy stay in neonatal intensive care, then special care wards. So when her developmental milestones such as crawling and walking didn’t happen, we put it down to her prematurity.
Continue reading Peter Howe’s family story
Please email stories@fshdglobal.org if you have a story you would like to share.