FSHD Facts
- There is no treatment or cure for FSHD.
- FSHD is one of the most common forms of muscular dystrophy seen in adults, according to a recent Orphanet study.
- FSHD affects both males and females of all races and age groups.
- The cause of FSHD is unknown.
- There are over thirty different types of muscular dystrophies and they are all genetically different – a cure for one is not a cure for all.
- To date, medications used for other muscular dystrophies have had no benefits for FSHD patients.
- There has been no direct Australian funding for FSHD research prior to FSHD Global establishment.
- New estimates believe FSHD may affect 1:7500.
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